My husband was diagnosed with dementia at 48, and I felt like fleeing

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This First Person column is written by Cindy McCaffery who is a caregiver for her husband. For more information about CBC’s First Person stories, please see the FAQ

“How did it feel to find out at age 48 that you have dementia?” I asked my husband.

John looked up at me with a look I’m well familiar with after living with his brain disease for 14 years. The look isn’t exactly consternation — more like concentration — his jaw set stiff, showing a deep determination to understand and process my query. Thinking is hard work for a person with dementia. His eyes squinted

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